Reprinted with permission from Sh’ma Magazine.
“It’s the hardest thing I’ve ever done.” So say sons, daughters, husbands, and wives who have cared for elderly relatives through long, slow declines. They’ve confronted dear ones with painful realities (“Dad, it’s really not safe for you to drive any more.”), made agonizing choices (“Mom will stay in her apartment with a caregiver; Josh will not go to summer camp, as we can’t afford both.”), lost sleep (phone calls throughout the night, day after day), and experienced unimaginable stress. They’ve felt guilty–for what they couldn’t do for their frail loved one, for the way in which their partners and children got shortchanged, for not being able to do it all.
The demands of family caregiving for the elderly will rise dramatically in the near term. The number of Jews older than 65 is growing at unprecedented rates (according to the National Jewish Population Study, 17% in 1990, 19% in 2000), and the most rapid growth is among the oldest old. So, families are called to care for elderly members living longer, and with more extended periods of greater dependency, than ever before. This task will be even more difficult as it falls upon an ever smaller pool of caregivers (due to the decline in family size) who live at greater geographic distance.
Caring for aging loved ones is one of the greatest challenges facing our Jewish community. The Herculean task of family caregiving, while demanding, and often sorely trying, is largely invisible and unacknowledged. Caregiving can change one’s life, whether in the context of supporting a frail parent through a stay in a nursing home, struggling to keep a parent in his or her home, or caring for a spouse or parent in one’s own home.
Caring for aging family members can be devastating, for as we watch our mom, or wife, or brother, decline, we lose him or her a little bit more each day. Caregiving can be depressing, for, as one daughter who has cared for her frail parents for 10 years told me, “It’s not a task you can succeed at. No matter how creative I am, how much money I throw at it, how dedicated I am, they don’t get better, they just get sicker and needier.”