Jewish Genetic Diseases: Resources

Resources for testing


Genetic diseases are prominent in the Jewish community. Testing is encouraged by most religious and medical authorities, and there are new types of diseases, as well as tests, emerging every year. Unfortunately screening can often be extremely expressive. A number of organizations are working toward bringing awareness, prevention, and treatment to more communities across the country.

Canavan Foundation

A foundation dedicated to helping prevent Canavan disease through education and testing and to supporting research efforts.

Center for Jewish Genetic Diseases

A project of Mt.Sinai Hospital devoted to the study of diseases that affect Ashkenazi Jews.

Chicago Center for Jewish Genetic Disorders

A site for anyone concerned about the genetic health and well-being of individuals and families in the Jewish community.

Dysautonomia Foundation

A foundation supporting research into prevention and cures of Familial Dysautonomia (FD) and supporting FD patients and their families.

Genetic Disease Foundation

A foundation whose mission is to support research, education and the prevention of genetic diseases.

Jewish Genetic Disease Consortium

Joining together a number of smaller organizations to raise awareness for Jewish genetic diseases.

Mazornet: Jewish Genetic Diseases

An online resource for information about Jewish genetic diseases

National Tay-Sachs and Allied Diseases Association

A foundation dedicated to the treatment and prevention of Tay-Sachs, Canavan, and related diseases, and to providing information and support services to individuals and families affected by these diseases, as well as the public at large

Victor Center for Jewish Genetic Diseases

A resource center that provides carrier screening, information, and referrals for Jewish Genetic Diseases.

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