February is Jewish Disability Awareness Month (JDAM), which brings a topic that is very important to us at the Foundation for Jewish Camp to the forefront of conversations all over the Jewish community. JDAM is “a unified initiative to raise awareness and support efforts to foster inclusion of people with disabilities and their families in Jewish communities worldwide.” To further the effort, we are running a series dedicated to discussing disabilities at Jewish camp this month.
Kicking off the series is a round-up of some of the most powerful posts by Joel Yanofsky, one of our resident bloggers and father to Jonah, a great teenager and camper on the autism spectrum.
Stay tuned for posts by camp directors, experts in the field, former campers, and more.
Our friends over at JTA are compiling amusing camp anecdotes for an upcoming special package on Jewish camping. From the strangest thing you ever received in a care package to the most unusual color break out, they want to hear your camp stories.
So head over to JTA and share some camp memories, or just email firstname.lastname@example.org a few detailed, complete sentences. Include your name, the name of the camp and when the anecdote took place. If you have any good photos, e-mail those as well, by Monday, Feb. 10 by 9:30 a.m.
There’s no point pretending this blog post is going to be about camp or summer, especially summer. Montreal in February is no picnic. In the grip of the latest polar vortex, I can’t even remember what a picnic is. This may explain why I sometimes wonder what if I only lived in a warmer climate; if my Russian-born grandparents, who had the foresight to flee the pogroms, also had the foresight to stowaway in steerage until their ship made it to, I don’t know, Miami Beach. In any case, they didn’t and now I stowaway in my house all winter. Even our dog, fluffy as she is, would rather stay in her crate until spring. Like the dog, I’m resigned to enjoying the great indoors. During the winter months, one of those indoor activities is party going. When they’re cold, Montrealers are a particularly sociable bunch; even anti-social types like me can’t duck every invitation.
But parties have their own hazards. At a recent get-together, I found myself making small talk with a woman I’d just met. Inevitably, we got around to discussing our children and discovered we both have fifteen-year-olds. She began describing her son’s efforts to find a good CEGEP – CEGEPs, here, are the equivalent of U.S. junior colleges – once he graduated from high school. I knew, of course, where the conversation was headed and braced myself.
“Your son must be thinking about CEGEP, too,” she said.
“Jonah is on the autism spectrum,” I said. “He attends a special needs school. College isn’t likely to be in the picture.”
A long silence followed; it seemed long anyway. There wasn’t much for her to say. She hadn’t said anything wrong. If anything, I felt a little bad for her. I’ve come to terms with the fact my son has autism, but that doesn’t mean I’m not brought up short, on occasion – reminded all of a sudden that your life, his life is going to be very different from the lives of other people. It’s what I call the “what-if-moment” – the moment you can’t help wondering what if your son didn’t have autism. What would his life, your life be like?
Such questions are at the heart of Bad Animals: A Father’s Accidental Education in Autism, the memoir I wrote a couple of years ago about my family. In some ways, writing the book brought me a small measure of acceptance. I don’t sweat the big stuff anymore. Wondering what it would be like if Jonah were headed for college makes as much sense as wondering what it would be like if I were heading out the door with my surfboard.
Still, the small stuff lingers. It would be nice, for instance, if Jonah and I shared an interest in sports, in particular watching sports on TV. Yes, I wish I could instill in my son my talent for being a couch potato – especially around now, Super Bowl time.
The good news is the “what-if” moments don’t linger. It helps, too, that I came up with some trick plays to keep Jonah in front of the big game a little longer than usual this year. Just before kickoff, I made a super-size bowl of popcorn and placed it strategically beside me on the couch. My thinking was: if I could just keep Jonah there until half-time, I knew he’d want to stay for the half-time show. Jonah and I do share a love of music as well as an uncanny knack for knowing the lyrics to popular songs. When he was a toddler I taught him Beatles and Bob Marley lyrics. This past year he’s got me singing along with Pink and Bruno Mars and, on Super Bowl Sunday, I got lucky: the half-time performer was, indeed, Bruno Mars. So, even though the popcorn was finished, Jonah and I sang along with the last song – “Just the Way You Are.” Then after the song was done, I hurried into the kitchen to make more popcorn.
January 28th was one such day.
I live and work in Atlanta during the school year. For months (MONTHS!) I’d been planning an Interfaith Social Action & Social Justice day, with Marist & Davis colleagues, for my 8th graders at the Davis Academy and our friends in the 8th grade at Marist School, a Catholic school just a few minutes away.
I hit roadblocks in planning. Locations, dates, times, school start times, Atlanta traffic concerns (Haha! Foreshadowing!) But then it came together, groups of 50 students each were scheduled to volunteer at the Atlanta Community Food Bank, MedShare, and Books for Africa. They were to be tasked with sorting and packing tons, literally tons, of: food for Atlanta’s hungry; books sorted into class sets for Africa schoolchildren; perfectly usable medical supplies, saved from landfills, and repackaged to be sent around the developing world. 120 kids were scheduled to participate in VolunteerStock at Davis, making turkey sandwiches for donation in midtown Atlanta, decorating a Prayer Canvas for the Boston Marathon, and making cards for Atlanta’s sick, elderly, and those who visit our local food pantries.
In the afternoon, everyone would meet at the MLK Center in Downtown Atlanta for lunch and a program that included the extraordinary speaker Stephon Ferguson.
The night before the program, we heard that we may have to cancel the second half of the program because of a snow storm. I stayed up late, calling and emailing faculty, staff, volunteer locations, and speakers. The plan for the morning? The show must go on! The afternoon? We will play it by ear.
The morning went off without a hitch. Then we said bye to Marist, hugged, and set up for our afternoon at Davis. Beautiful. I could stop there, the blog post would be done, everyone would smile and know that 220 students and many dedicated faculty and volunteer chaperone adults did good all around Atlanta.
Then, the afternoon arrived. Snow started falling. Carpool started early. Mr. Ferguson couldn’t meet us at Davis because of traffic. Atlanta was coated in dreamy white.
700+ sandwiches sat in my car. Google told me that because of the traffic caused by the storm, it would take two hours to get to the food bank, 24 miles away. My colleagues encouraged me to set out – “you should at least try to get there” even while the transit map was beyond foreboding. I was barely driving. I moved two miles in one hour, and this was better than most. I know many people who took upwards of 10 hours to get home. There were over 700 accidents A baby was born in a car on the highway.
285 minutes, an average of 11 mph, innumerable reroutes, countless others nearly skidding into my car, a giant headache, one stop for gas/bathroom/candy/medicine, and one guy who parked in front of me for a good 20 minutes, trying to turn left, transpired. Close to home, I FINALLY maneuvered my trusty all-wheel drive Subaru Outback into the driveway of the organization that was awaiting our sandwich delivery, hours after their usual closing time. Someone pointed out to me that I could’ve given those sandwiches out to my compatriots stranded on highways, but I’m stubborn and focused. I was a woman on a mission.
How’d I pass the time? I rolled down my window to thank emergency workers, and tried to add levity to the gridlock by making faces at my fellow stranded. I Tweeted and Facebooked while I was in park (which I was, most of the time). One of my colleagues, who took three hours to drive the three blocks between Davis and home, took this picture of two of our 8th graders, serving hot coffee to those stuck in traffic outside of their homes.
The day of service didn’t end at noon, 1:30, 2:30, or even 7:30. It marched into the night. I’m warm now, but every time I look at that picture of our 8th graders serving coffee, my heart melts yet again, as they lived out what it said on our Prayer Canvas “Love Your Neighbor As Yourself.”