Tag Archives: disease

Ayelet zt”l and The Ability to Transform the World

This week has been a heavy one for the Jewish people and an indescribably difficult one for the parents of young Ayelet Galena zt”l who left this world Monday morning. Ayelet was two years old and was diagnosed with a rare bone marrow disorder called dyskeratosis congenita.

Ayelet’s struggle for life became everyone’s struggle. Her parents utilizing social media, particularly Facebook, updated her close to 6,000 “fans” on a regular basis. The images of little Ayelet simultaneously exhibiting so much will to life and yet so much suffering and pain, united thousands of people to do something. Many people prayed for her daily; others baked challah in her merit, while others re-posted the updates from her parents to their social circles often, thereby expanding the circle of support and care by leaps and bounds.

The loss of Ayelet is not just the loss of one beautiful little girl. It is not just the loss of the potential for her life and all that she might have accomplished. It is both of those things but also so much more. The Mishnah in Tractate Sanhedrin teaches us that the loss of a single life is as if an entire world was lost forever. There are generations of descendants from Ayelet the world will never know. There are countless people who would have been touched by her life who will not have that experience. In chaos theory there exists a concept called the butterfly effect in which one small change can bring about tremendous results that would be impossible to anticipate. The loss of Ayelet is not just a small change to the world, it is an enormous change, and the impact that she would have brought to her family, her people and the rest of humanity, will never be known.

Yet, the Mishnah also teaches us the converse as well. One who saves a life is as if she or he saved the entire world. And there is no doubt that the heart wrenching struggle for life waged by Ayelet and her family, broadcast to the world has brought about so much good. One often wonders how much they can truly impact the world. What difference can I really have in a global community of over seven billion people? The story of Ayelet is the loudest protest possible against the proposition that our lives do not and cannot matter. Each one of us can make such a tremendous difference.

Of all the actions that occurred to express support with Ayelet and her family, perhaps the most impactful of them all was the organization of countless cheek swabbing drives to add people to the bone marrow registry of Gift of Life and the also important fundraising drives for Gift of Life. Because of those cheek swabbing drives, when Ayelet tragically left this world on Monday morning, 21 people had found their lives saved through the bone marrow registry and the registration of all those new people. Twenty one people in this world owe their lives to the good will of complete strangers who were inspired at the very deepest levels to act because of Ayelet Galena zt”l. In other words, because of Ayelet there now exists another twenty one worlds of human life and meaning.

This is the impact of one person. One two year old child was able to galvanize people to give of themselves and restore life to another twenty one people. If we learn anything from the tragedy of the loss of Ayelet let it be two ideas: 1) Donate to Gift of Life and register with Gift of Life. Each registration to the list costs money; the more people who are registered the greater chance that another human being can live another day and if you have not done so already, take that simple cheek swab and become part of the registry. 2) Anytime you feel your life does not matter, anytime you are confident that the world would be no worse or better with or without you, remember Ayelet. The struggle of one small child restored life to twenty one people. Ponder and reflect on that because you never know how and in what way you will make that difference.

Posted on February 2, 2012

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